On 28th February, for Rare Disease Day the Vivaldi Auditorium is holding an event to raise awareness about Syringomyelia and Chiari malformation.
The Regional Expert Centre for Syringomyelia and Chiari syndrome is an integrated and interdisciplinary business management model for rare diseases funded by Compagnia di San Paolo.
The project stems from the need to manage patients with rare diseases - one of the healthcare problems of modern medicine - through the development of organisational models providing specialist expertise and quality care at a low cost.
The European Union has set up a referral network with designated national expertise centres geared at coordinating multidisciplinary expertise and processing diagnostic and therapeutic protocols for Syringomyelia and Chiari syndrome, rare neurological diseases with a high economic and social impact.
The project results will be presented on 28th February at 6pm at the Vivaldi Auditorium. At 7pm there will be a classical music concert, the Leopold Mozart Sinfonietta, conducted by Barbara Sartorio.
The event will feature:
Nino Boeti, Regione Piemonte
Sonia Schellino, City of Turin
Gian Paolo Zanetta, General Manager of AOU City of Health and Science of Turin
Guido Regis, Medical Association of Turin
Franca Fagioli, General Council of Compagnia di San Paolo
Carlo Celada, Chair of the AISMAC Association